As some of you know, our daughter (born in 2010), Brynn, was born with Cystic Fibrosis. CF is a chronic illness that causes abnormally thick mucus, which can lead to life-threatening lung infections and digestive complications. CF sufferers take numerous medications to keep illnesses at bay, and many struggle to keep their lungs clear and maintain adequate nutrition. Approximately 30,000 Americans suffer from CF.
If you’ve met Brynn, then you know that she looks and acts like any other kid; her diagnosis hasn’t slowed her down. But CF is a part of her every day. To compensate for pancreatic deficiencies, she requires medication with every meal. And to promote respiratory health, twice daily for 30 minutes, she wears a vest which fills with air and pounds her chest to help loosen the mucous in her lungs. That’s the norm when Brynn is healthy; when she’s sick, she requires additional therapy. To date, she’s been hospitalized three times due to persistent respiratory infections.
Thanks to research and better medical treatments, the average lifespan for those living with CF continues to climb gradually; at present it hovers in the upper-30s. We hope that it will continue this course and one day, Brynn and others will have a cure.
The mission of the Cystic Fibrosis Foundation, a nonprofit donor-supported organization, is to improve the quality of life for those living with the disease; to support efforts to find better treatments and medications; and to work toward a cure. The Foundation receives no federal funding to accomplish its aggressive goals. It is through the dedication of volunteers and the generosity of community-minded organizations that helps to fuel our fight against CF. (Note: The Foundation is an accredited charity of the Better Business Bureau’s Wise Giving Alliance, meeting all of its Standards for Charitable Accountability, and the CFF takes great pride in being a careful steward of every dollar raised in support of the mission.)